AGU Launches National Campaign on Rare Diseases

AGU Launches National Campaign on Rare Diseases

Princess Al Jawhara Al Ibrahim Centre For Molecular Medicine, Genetics and Inherited Disorders (ACMID) in the Arabian Gulf University (AGU) launched the activities of the National Rare Diseases Campaign, which is organised for the seventh consecutive year, in line with the international campaign to raise awareness on rare diseases, annually held in the month of February.
ACMID launched the campaign this year by the beginning of the ongoing week under the theme “Building Bridges Between Health and Social Care”. As the campaign is targeting younger generations, the centre received 40 students and their teachers from the different schools of Bahrain within an educational and awareness activity.
The centre, which is specialised in genetic diseases, is endeavouring to intensify its efforts to raise more awareness on rare diseases, considering the rising numbers of patients as the latest statistics show that one person out of every 2,000 individuals is affected by rare diseases, while it also showed that there are 15 million rare disease patients in Arab states.
Rare diseases are considered as genetically-generated diseases that affect patients since birth, however, some symptoms only appear at a late age. The National Rare Diseases Campaign seeks raising more awareness on genetic diseases and early diagnosis to avoid the complications of its symptoms in the future.
Speaking on the topic, Genetic Diseases Consultant at ACMID and Head of the Campaign Dr. Cristina Skrypnyk, announced that this year’s activities come as a continuation of the efforts dedicated to shedding more light on patients with rare diseases and their need for health and social support.
She asserted that ACMID looks forward to raising and spreading more awareness and building solid bridges between the academic and health sectors and the society to serve patients with rare diseases.
Dr. Skrypnyk explained that the campaign includes various awareness activities that include publishing real stories of patients with rare diseases through social media channels, organising contest and awareness games and holding gatherings consisting of patients with rare diseases and their families.
She added that the activities of the campaign come with the aim of exchanging expertise and experiences, in addition to establishing a social network to support this category of patients. The activities will also include a series of lectures and open talks to be held in the different universities in the Kingdom of Bahrain, and will highlight rare diseases and their impact on the society.
In line with the second International Pediatrics Conference, which will be organised here by AGU on February 28 this year, the campaign will organise an exhibition to be held on the sidelines of the conference, aiming to raise awareness on rare diseases and the necessary examination to detect it.

Source : agu.edu.bh